Online communities for miscarriage, stillbirth and premature birth

A list of the best supportive blogs, instagram and Facebook accounts from parents who have gone through miscarriage, stillbirth, premature birth, neonatal death and termination for medical reasons (TMFR)

"When my son was stillborn, I couldn’t find anything to read about the mum’s personal experiences and what to expect... I needed something real, something I could relate to. It’s now been some time since my son passed away and I’m hoping by doing this families can find comfort that they are not alone and it’s okay." Hannah Pontillo

This is a list of blogs and social accounts from women who have suffered pregnancy loss/es or preterm birth. Most have worked with us to raise awareness and the importance of research in reducing loss.

All write movingly about their experiences of loss, life after loss and, in some cases, pregnancy and pregnancy/parenting after loss.

Legacy of Leo 

Jess shares the story of Leo Phoenix, her son who was stillborn in 2016, and what followed his birth. She is passionate about raising awareness, supporting others and sharing the honest truth of fertility treatment, baby loss, stillbirth, miscarriage and pregnancy after loss. As well as blogging she is on Twitter, Facebook and Instagram.

https://thelegacyofleo.com/

From the other chair 

Michelle's daughter Orla was stillborn. As a clinical psychologist, Michelle talks openly and honestly about loss and mental health from both the personal and professional viewpoint. As well as blogging she is on Twitter, Facebook and Instagram. Michelle has since had a rainbow baby and has written about issues around pregnancy and parenting after loss..

https://www.instagram.com/from_the_other_chair/?hl=en

www.fromtheotherchair.co.uk

The uterus monologues

Jennie Agg is a writer and journalist and started her blog in 2017, writing about her experience of recurrent miscarriage. 

https://uterusmonologues.com/about/

https://www.instagram.com/jenniemonologues/

One day of Winter

Nicola Gaskin lost her son Winter one day after his birth. She has since gone on to have a daughter. She has blogged about her loss as well as her following pregnancy and parenting after loss.

https://onedayofwinter.com/

https://www.instagram.com/onedayofwinter/?hl=en

Feathering the empty nest

Elle Wright's son Teddy died 3 days after he was born. She writes about life after loss in her book 'Ask me his name' as well as in her blog and social accounts.

http://www.featheringtheemptynest.co.uk/

https://www.instagram.com/feathering_the_empty_nest/?hl=en

Mama Prozac

Laura Deadman Jones suffered 5 miscarriages in total before having her rainbow baby Ivy.

www.instagram.com/mamaprozac

This is my brave face

Amy Campbell is a mother of twins, Charlotte and Esme who were both born on the 10th July 2016. Esme died on 30th August 2016. 

https://thisismybraveface.blog/about/

Francesca Segal

Novelist Francesca Segal’s identical twin daughters were born 10 weeks prematurely – one weighing just 2lb, the other even less. This is her account of that first agonising month in neonatal intensive care

https://www.telegraph.co.uk/family/parenting/diary-premature-birth-twins-weight-apples-couldnt-come-now/ 

www.instagram.com/francescasegal

Help a mummy out

In 2017 Louise was pregnant with twins. At 28 weeks she lost one baby and the other, daughter Eva was born far too soon. She writes about her experiences.

https://www.helpamummyout.co.uk/ 

www.instagram.com/helpamummyout

Hannah Pontillo

Hannah started her blog because when her son Dexy was stillborn. She wants to help others navigate life after loss as well as raising awareness of baby loss in the UK.

https://hannahpontillo.com/about-me/

www.instagram.com/hannahpontillo

Tommy's Facebook support groups

Tommy's runs a general support group for those who have suffered miscarriage, stillbirth, premature birth, neonatal death or termination for medical reasons: https://www.facebook.com/groups/Tommysblsupport/?source_id=23965992328

We also run a pregnancy and parenting after loss support group through our Midwives on Facebook page: https://www.facebook.com/groups/351266875799474/

More information and support

  • Man supporting his partner

    Terminating a pregnancy for medical reasons (TFMR)

    When a baby is diagnosed with a life-limiting medical condition in the womb the parents are faced with the heartbreaking decision of whether to end the pregnancy. Having a termination for medical reasons can be a huge trauma. You should be given all the information you need to decide what’s best for you.

  • Elle Wright

    Neonatal death - information and support

    When a baby dies within the first 28 days of life this is called a ‘neonatal death’. Find out why some babies die, understand the grieving process and the practical things you might need to think about after the loss of a baby.

  • White flowers.

    Stillbirth - information and support

    A stillbirth is the death of a baby after 24 weeks of pregnancy but before or during birth.

  • Woman looking sad.

    Miscarriage - information and support

    Going through a miscarriage can be a very sad, scary or lonely experience. We hope our information answers any questions you have during this difficult time.

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    Please note that these comments are monitored but not answered by Tommy’s. Please call your GP or maternity unit if you have concerns about your health or your baby’s health.

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