Becoming pregnant after a stillbirth is a daunting prospect characterised by terror of repeating the experience. Around half of all stillbirths are unexplained, which can leave parents feeling powerless to prevent it happening again.
Where there is an explanation, it is often related to failure of the placenta and a following pregnancy is at greater risk of recurrence. In addition to these worries, care during a pregnancy after a stillbirth can be very mixed, with a parent having to explain over and over again, to different health professionals, what they have gone through.
Two clinics funded by Tommy’s in St Mary’s Hospital, Manchester, aim to address these issues. The Placenta Clinic cares for women who are at high risk of placental failure, and the Rainbow Clinic cares for women who are pregnant after a previous stillbirth.
I carried on thinking, 'I'm going to meet my baby soon'
Jennifer Iddon’s baby Alexander James was stillborn at 36 weeks. She had started feeling what she thought were Braxton Hicks but by the end of the day she was in so much pain that she thought she might be in labour. ‘I went into hospital and they asked if I had felt the baby move, but I’d just been concentrating on my contractions and how far apart they were. So I just carried on thinking, “I’m going to meet my baby soon”.
‘When they asked me a third time about the baby’s movements I started to get twitchy. They took me aside and did a Doppler test and couldn’t find the baby’s heartbeat. The midwife said that it might be a problem with the machine, went away, and returned again with another monitor and a second midwife. Then I started to think something was wrong. The second machine still couldn’t find a heartbeat, and when the doctor said “I’m very sorry…” I just knew.’
Jennifer found out later that baby Alexander had Down’s syndrome and that there may have been problems with the placenta. She was offered a test to check whether she or her husband had an increased chance of having babies with Down’s syndrome and when this proved not to be the case they decided to try for another baby.
The clinic provides a structured care plan
Jennifer had already seen some of the obstetricians at the Tommy’s Placenta Clinic after Alexander’s post-mortem – and when she became pregnant again her doctor referred her to the Tommy’s Rainbow Clinic. The clinic provides a structured ongoing care plan for women, and the staff, who are the same for each woman throughout the pregnancy, are always available to talk through worries and fears. ‘I was very stressed during this pregnancy and I could just chat about what had happened with Alexander with the midwife there, Suzanne, and keep talking through my worries. It was a life-saver.‘
Twelve weeks in I was told that I had Group B Strep by my midwife, handed a leaflet and told not to worry. I was left with a load of questions. Was this how Alexander had died? I went straight to the Rainbow Clinic and Dr Alex Heazell talked through all the questions with me.‘
'My concerns were taken seriously'
I was given scans and had my measurements taken fortnightly. It really meant a lot not to have to repeat my story and concerns every time I went for an appointment. In the clinic, rather than being told "Don’t worry," my concerns were taken seriously.'
Happily, Jennifer went on to have a healthy baby girl, Isabella Lucia: ‘Because of my history, I was booked in for an induction the day before my due date. When she was born she screamed the place down! I was in floods of tears. There were tears all round!’
The clinics sit at the heart of the stillbirth research conducted in the centre
The clinics allow Alex and his team to gather data for future research into placental function. ‘They sit at the heart of our research,’ says Alex. ‘By following women through to birth we can study the placentas and make connections.’ For Jennifer, the clinic gave her the confidence that her pregnancy had the best chance of success: ‘The clinic is not going to guarantee a successful outcome, but it gives you more of a fighting chance and helps to relieve much of the stress. The team are a credit to the hospital, Tommy’s and the North West. I was very lucky and am very grateful. I would have been reluctant to try getting pregnant again if I didn’t know this clinic would be available.’
The Placenta Clinic, run as part of the Tommy's Stillbirth Research Centre at St Mary's Hospital in Manchester, is the largest placenta-focused research group in the world.
Tommy’s research centre at St Mary’s Hospital opened in 2001 and is now home to around 100 clinicians and scientists researching the causes of stillbirth.
When a baby dies after 24 weeks of gestation, it is called a stillbirth. Around 3,500 families a year get the devastating news that their baby is not alive. Our research is helping to change this.
research into stillbirth
By Anonymous (not verified) on 11 Aug 2018 - 21:15
Do Tommy’s offer specialist psychological support through the rainbow clinic or just support from midwives ?
By Midwife @Tommys on 16 Aug 2018 - 09:53
They do not have a specific psychological service within the clinic however they will be able to make referrals to services local to the clinic to support you. If you would like to talk about this further then please do email us [email protected] with a bit of background information.
By Anonymous (not verified) on 5 Apr 2018 - 20:36
On 28th Dec 2017 I gave birth at 32 weeks to my beautiful stillborn daughter. I am now 9 weeks pregnant and petrified quite honestly.
I also feel very confused about the care I am being given with antenatal apps, EPU scans and my dating scan all taking place at different places and different departments. Is there any advise you can give me on this? I have visited your website many times since the loss of our baby but It wasn't until I visited it today that I found out about your rainbow clinic. How would I go about getting referred?
By Midwife @Tommys on 6 Apr 2018 - 13:28
Firstly I am so sorry to hear about the loss of your daughter, and it completely understandable that you are feeling so petrified in this pregnancy.
Anyone can be referred to the clinic, this can be done by your GP, so just make an appointment and ask. They do not need any forms or paperwork in particular, just a usual referral form.
If you need any support, either with a referral or just general emotional support throughout this pregnancy then please do be in touch with us. You can contact us via email on [email protected] or via phone on 0800 0147 800.
I wish you all the very best in this pregnancy.
Take care, Tommy's midwives
By Midwife @Tommys on 1 Aug 2017 - 11:51
Hello and thank you for sharing your news. It is really lovely to hear that you and your little boy are doing well. Many congratulations on the birth of your Son. It is fantastic that you have received care from the amazing team at the Rainbow Clinic and Preterm Labour Clinic.
Wishing you lots of joy as a Family
By kayley farrell (not verified) on 1 Mar 2018 - 12:47
Thank you all so much xx
By Kayley (not verified) on 31 Jul 2017 - 23:43
After looseing 3 baby boys at 25 wks,23 wks and 18 weeks, but having to healthy girls born at 35 wks i was convinced i couldnt carry boys,last year i unexcpectidly fell pregnant i found out it was a boy i was convinced i would loose him, anyway after being looked afted by rainbow clinic and preterm labour clinic my baby boy was deliverd in may at 34 wks, thank youbfor getting me through some dificult times
By Anonymous (not verified) on 24 May 2017 - 18:21
My son was stillborn a year ago, full-term, after substantial blood loss following a velatemous chord insertion when I went into labour.
Im now 13 weeks pregnant and petrified I'm going to lose this baby. I don't want to tell friends and family again for fear of having to tell them bad news again after getting there hopes up.
As soon as I have a scan I want another for reassurance, convinced something has happened in the week past.
The rainbow clinc sounds like such a great idea to support so many woman in this situation. Are there any others around the country?
Many thanks in advance
By Midwife @Tommys on 25 May 2017 - 11:10
I am so sorry to hear about the loss of your little boy only a year ago, thank you for sharing your story. It is so understandable that you are feeling frightened in this pregnancy, you will need a lot of support and reassurance and it is important that you have a good support network around you. If you would like to contact us directly then we can try and find what help is available where you live or just talk through your worries and anxieties. You can contact us on 0800 0147 800 Monday to Friday 9am-5pm or email on [email protected] Please contact us any time or when you feel ready and we will help you in any way we can. Take care x
By Anonymous (not verified) on 25 May 2017 - 13:40
Thank you. I will phone the number x
By Anonymous (not verified) on 18 Apr 2017 - 20:27
I just came across this website and didn't realise that Tommybwere doing such wonderful work! I lost my beautiful daughter in July 2016 at 31 weeks and it shook our world. We are naturally nervous about getting pregnant again, especially as I have had 3 previous c-sections in total. Would this prevent me from getting pregnant in any way again and if I got pregnant now (after 9 -10 months) would that cause any serious problems? Also I heard that you should have a BMI under 30 before conceiving! Sorry for all the questions.
By Midwife @Tommys on 19 Apr 2017 - 09:46
Thank you for all of your kind words and support, we really appreciate it! I am so sorry to hear about the passing of your beautiful daughter last year! That must be incredibly tough for you and your lovely family!
It would certainly be a good idea for you to have a pre-conception meeting with an Obstetric Consultant at the hospital where you have had your care previously so that they can go through all of your medical and pregnancy history. Then, the pro's and con's of trying for another pregnancy can be weighed up and understood fully, so that you can both make an informed decision. You would also have consultant led care for another pregnancy in view of your loss, as well as having had x3 cesareans. In a future pregnancy, you would have far more scans and appointments throughout to ensure your and babie's health.
Most Obstetric consultants would recommend approx 18 months between pregnancies following a cesarean to ensure the uterus has had time to properly heal- but this would be best discussed with your consultant as these are often individualized decisions tailored to your medical needs.
Having a BMI of 30 or over does put the body under more stress and achieving a healthier body weight pre- pregnancy is always advisable, however many women achieve pregnancy with a far higher BMI than 30.
If you wish to call us on 0800 0147800 or email us at [email protected], we can discuss things further if you so wish to.
Otherwise, we would advise that you make a pre-conception appointment at your local hospital and go from there. Please take good care of yourself!
All the best :)
By Beckie (not verified) on 12 Dec 2016 - 06:59
I went over my due date & ended up giving birth to a still born girl on 5th march 2016, I am now pregnant again due in April , the worry & anxiety is becoming worse each day & im sick with worry , would be nice to speak with someone who is in the same situation.
By Midwife @Tommys on 12 Dec 2016 - 09:01
I am so sorry to hear about the passing of your beautiful daughter and a further pregnancy of course will cause you some anxiety and worry, those are completely normal feelings to have!
Please feel free to call us on 0800 0147800 to speak to a midwife and we can try to help put you in touch with some other parents experiencing something similar to you and your partner. Please look after yourself.
By Midwife @Tommys on 26 Oct 2016 - 09:46
I am so sorry to hear that you lost your baby at 37 weeks in August. Please do give us a call anytime 9-5 weekdays on 0800 0147 800. If you're not ready to talk please feel free to email us [email protected]
Thank you for posting Tommys Midwives
By Anonymous (not verified) on 25 Oct 2016 - 21:22
I lost my baby at 37 weeks in August.
Even after scans every 2 weeks IUGR was not picked up.
This does now give me much reassurance for future pregnancies.
Can anyone ring to speak to a midwife. X
By Midwife @Tommys on 11 Oct 2016 - 14:57
I am so sorry about the sad loss of your daughter, Eva.. I 'm glad you can relate to Jennifer's story &+ hopefully it helped a little. Perhaps you could get your GP to refer you to the Rainbow Clinic when the time comes for you to conceive again?
It may help you get some answers? Please feel free to give one of our Tommy's Midwives a call to talk through any of your concerns . A Midwife is here from 9am till 5pm every weekday if you want to have a chat
By Anonymous (not verified) on 8 Oct 2016 - 18:12
I was pregnant & I was induced on July 26,2016. Eva was born sleeping, she had no heartbeat, & was not breathing. My husband & I world stopped. It all happened so fast she was okay prior to giving birth. I want to have another baby.
I love Jennifer's story because she never gave up. Our children are living in paradise, they're safe in God's care.