Organisations for support around premature birth

Having a premature birth can impact on your physical and emotional health. But you are not alone. There are lots of organisations that can provide more support.

If you’re worried that you or your partner are struggling to cope during or after pregnancy, talk to your midwife, doctor, health visitor or GP. They will help you access the support you need. We also have lots of information about your mental health before, during and after pregnancy as well as links to other relevant organisations that can support you

You can also talk to the Tommy's midwives on our pregnancy line. Call 0800 014 7800 (Monday to Friday, 9am to 5pm), or email [email protected]

Premature birth

Bliss Information and support for parents, family and friends of babies born premature or sick. 

Tiny Life Northern Ireland’s premature and vulnerable baby charity that provides a range of support services.

Pregnancy complications

Action on pre-eclampsia Support for those affected by pre-eclampsia.

Antenatal results and choices (ARC) Information and support before, during and after antenatal screening

APS Support UK Information and support for anyone affected by APS

Diabetes UK Support for people with type 1 or 2 diabetes or gestational diabetes.

Ectopic Pregnancy Trust Information and support on ectopic pregnancies

Group B Strep Support Information and support on Group B Strep infection

ICP Support Information and support about intrahepatic cholestasis of pregnancy (ICP) (also known as obstetric cholestasis (OC))

Incompetent Cervix UK A Facebook group for anyone and everyone in the UK and Ireland who would like advice, info or support on any aspect of cervical insufficiency.

Peeps Support for parents, families & friends of those who have experienced an H.I.E. event (Hypoxic-Ischaemic Encephalopathy).

UK TAC Support Group A Facebook group specifically for women who have a transabdominal cerclage or are thinking of having one placed in the UK or in Ireland. It has been award nominated for the support it provides to its members.

Twins Trust Support for families with twins, triplets and more

Family and practical support

The British Association for Counselling and Psychotherapy (BACP) provides information for people who are thinking about counselling. Their website also has a directory of qualified therapists.

British Red Cross. First aid courses for parents.

Carers Trust Information, advice, discussion and support for carers

Carers UK Support for carers and their families

Child Accident Prevention Trust (CAPT) Information on how to avoid injury and serious accidents involving children 

Contact Provides information and support to families with disabled children

Home-Start Help families with young children deal with the challenges they face

Gingerbread Information and support for single parents

Maternity Action UK have more information about your rights to maternity leave and pay if you’ve had a premature birth

Patients Association Information and advice on healthcare services, dealing with problems and handling complaints

Relate Offers advice and support on relationships

The Royal Society for the Prevention of Accidents (RoSPA) has released a suite of new resources and practical advice for parents and professionals on how best to transport premature and low birth weight babies

Twins Trust Support for families with twins, triplets and more

The Lullaby Trust Information and support on safer sleep for babies

Working Families Information on employment rights, childcare and flexible working

Long-term health conditions and disability

Finding out that your premature baby is likely to have a long-term health problem or disability can difficult. But there are lots of organisations that may be able to help

If your premature baby dies

The loss of a baby is devastating. We’re here to offer emotional and practical support to parents and families who are going through this experience.

If you want to talk to a professional about how you’re feeling, our team of expert midwives are available via the Tommy’s advice line on 0800 0147 800, 9am-5pm. If you’re not ready to talk, we have some information that might be useful