Tommy's PregnancyHub

If your premature baby dies

Most premature babies go on to lead healthy lives, but unfortunately some do not survive. There is support available if this happens.

If a baby dies within the first 28 days after they’re born, it is known as a neonatal death. The loss of a baby is devastating. We’re here to offer emotional and practical support to parents and families who are going through this experience.

What happens when a baby dies

Hospitals have procedures to follow when a baby dies, which the staff can explain to you. This should include offering you and your family time alone with your baby, to hold them, take photos or footprints. Parents have told us that despite the grief this is a very special time, a time to create memories and acknowledge their baby’s life.

Find out more about spending time with your baby after loss.

Emotional support for parents after loss

The loss of a baby is overwhelming. Every parent will react and grieve in their own way, but you may experience feelings such as shock, guilt, anger and despair.

We are here for you. Our team of midwives are able to talk to you about what you’re going through. You can talk to them for free on 0800 0147 800, 9am to 5pm, Monday to Friday. 

Find out more about coping with grief after a loss.

Practical support after baby loss

After a baby dies, you will have decisions and arrangements to make. This will include registering the death and planning a funeral. This can be overwhelming, but we have practical advice to guide you through it.

Parental Leave and Pay

If your baby has died, you are entitled to all your parental rights and benefits. Find out more.

More support and information

Join the Tommy’s baby loss support group on Facebook to speak to other parents who have lost a baby.

Saying Goodbye has a befriending service. You can also attend Saying Goodbye ceremonies across the country to remember your baby.

The Child Bereavement Trust has support groups, offers counselling and lots of online resources. They can help siblings through a bereavement.

Twins Trust is the Twins and Multiple Births Association for support with losing a multiple birth baby.

Review dates
Reviewed: 23 August 2021
Next review: 23 August 2024